Stephen LeBlanc, owner of LeBlanc Studios here in Sarasota, needs our support. He is going to die without a liver transplant.
Although I do not have the pleasure of knowing him well personally, I am associated with several friends and colleagues of his, and have nothing but respect for the man.
But this weekend I found out he has been living with a pacemaker for twenty years, and dealing with Hepatitis C - which he got from a blood transfusion many years ago.
Late last year Stephen became ill. In just a few months, the hepatitis virus attacked his liver and in January he began being hospitalized for cirrhosis of the liver and has now suffered liver failure.
In a letter that was forwarded to me originating from Ginya Carnahan:
“Our mutual friend Stephen LeBlanc, owner of LeBlanc Studios (photography) and a longtime independent businessman in Sarasota has recently been accepted on Tampa General Hospital’s transplant list to receive lifesaving liver transplant.
His story is one of great challenge, strength and faith. Stephen was born a “blue baby” 50 some years ago in Texas. A congenitally malformed heart caused his blood to not be sufficiently oxygenated, giving him a blue cast. He was fortunate to be in Texas and received his first life-saving open heart surgery at the hands of Dr. Denton Cooley, who later became the “Grandfather” of cardiac surgery. But in the process of correcting his valve malformation, the muscles that power the heart were damaged and weakened over time. By the time he was 30, Stephen needed a cardiac pacemaker, and he has depended on one ever since.
Over the years, he had many surgeries and received blood transfusion many times. Unbeknownst to him or others, one of those blood transfusions was tainted with Hepatitis C virus. This was way before the blood transfusion industry had the ability to test for and destroy units of donated blood infected by Hepatitis C. He has been aware of his “Hep C positive” status for many years. The virus usually remains dormant in the body for years – but when it becomes active it attacks the body with a vengeance.
Although this knowledge was a weight upon his conscience, he didn’t let it stop him from living a full, active, giving life. For years he has worked out with weights and accomplished advanced competitive water skiing, including “barefooting.” In those days to see him you would think him a model of healthy living.
Late last year Stephen became aware that his normally healthy body was becoming ill. In just a few months, the hepatitis virus attacked his liver and in January he began being hospitalized for cirrhosis of the liver and has now suffering liver failure. He is going to die without a liver transplant.
Stephen has been very private about his condition and struggle up until now. He is a proud, brave, Christian man. Today, not only does he stand to succumb to this disease, even if he receives and survives a transplant he may lose his business. This is a man who was always gracious with his time and talents, donating portraits to many non-for-profits, supporting the Boys and Girls Club, holding seminars for young photographers at his studio and actively participating in his church. He is an exemplary husband and father to two wonderful children.
On top of two rough years because of economic forces, now he has been unable to work for months and has pared down his staff to a bare minimum. He is frightened for them and his family and is facing the unknown strengthen by his faith.
I have known Stephen for 15 years and like many of his friends I am asking what can I do for him? There is not much that one person can do – but there are things we can do as a community. We are holding an honorary blood drive in Stephen’s name on Saturday, May 22 at the Leblanc Studio (3103 Fruitville Road) from 10 am until 2 pm. The blood collected will not help Stephen directly but it will help replace the volume of blood he has received, at a particularly trying time for community blood supplies (Memorial Day weekend). We will also have representatives from LifeLink (the organ donation foundation) onsite to encourage people to sign up to be organ donors. This will not likely benefit Stephen directly either, but it will help someone unknown down the road who may be in Stephen’s situation.
And – we are in the process of opening a special bank account to receive monetary donations. I feel that if this story is told, our community will rally around Stephen and his family and help make this transition (however it unfolds) easier on them.”
So please join me and donate some blood – we may not be able to help Stephen directly – but we can help others like him.